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Let’s Make Duchenne History

Duchenne muscular dystrophy is the #1 genetic killer of children worldwide. We’re making historic progress to beat it.

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Thank you for an AMAZING third annual Hustle for Muscle! We had a blast hustling and happy hour’ing with everyone who came out. Stay tuned for 2020 details. Want to support your favorite 2019 fundraiser or team? It’s not too late!

In honor of Charley’s 18th birthday, we present…

18 reasons to keep up fight
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featuring Charley’s 18 cousins!


to support our work

Charley’s Coffee Club

Fueling research for a cure. One cup at a time.

Introducing a new way to support Charley’s Fund. Meet Charley’s Coffee Club, our monthly giving program.


We are Charley’s Fund

DEPLOYED to advance new therapies

Read up on our research strategy – Click on the button below

RAISED through The Race to Yes

Learn how we’re shining a light on the regulatory process

MOVING with our support

See what treatments are currently moving forward



Your donations + our creative thinking =
historic progress


Learn how we target and tackle challenges



To support innovation



Charley, an 18-year-old spitfire, is our original inspiration. Over the past 12 years we have met many other children whose colorful personalities and intense passions deepen our resolve to end Duchenne.



Updates & Inspiration

Homepage NewsResearch News
April 16, 2019

Dr. Dada Pisconti presents preliminary neutrophil elastase inhibitor data at 2019 MDA conference

You may remember that in 2017, we teamed up with Duchenne UK and Joining Jack to fund research into the potential of neutrophil elastase inhibitors…
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Homepage NewsResearch News
April 1, 2019

NYTimes spotlights problems — we’ve got solutions underway

Last week, The New York Times ran this article about Duchenne. The story mentions the incredible breakthroughs that are currently taking place in the field, but it also highlights…
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Fundraising IdeasHomepage News
February 16, 2019

How do you speed research in style? Host a sip and shop to stop Duchenne!

One Thursday evening last December, supporters from across New York stepped in from the cold for a special evening of camaraderie and shopping to benefit…
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Find Out First

Get exclusive updates on DMD – and what we’re doing to stop it – straight to your inbox by CHARLeNews